Haemochromatosis is treated by (Venesection treatment) removing about 500ml of blood, as in blood donation, usually once a week. The body is stimulated to make more blood and this uses up the excess iron.
To read more head over to the Haemochromatosis website.
We are
We found the Haemochromatosis in his system by accident, he was very sooky awhile back no matter what i said or did he would cry and complain his leg or ankle hurt, this went on for about 3 weeks, day and night. After at least 4 visits to the medical center, we were sent for blood tests, everything came back normal except his iron levels which were very high, so we were sent for the Haemochromatosis test, which came back positive.
We also found out he has Flat Foot.
The doctor thinks this could be why his leg and ankle hurt so much,
but im not so sure!
We now have the 'proper' orthotics but were yet to find a pair of shoes wide enough to fit them in.
Do you know of any young children who have Haemochromatosis?
11 comments:
I have never heard of this but it is so scary, isn;t it? To find that your child is sick and unhappy, but at least they have determined what is causing it so you can treat it and he will soon feel better.
I will say prayers and thanks for sharing this information.
Take care.
Alison
My father has haemachromatosis and my brother has the gene but I do not. My father never new he had it until after he finished chemo and was still having issues. It seems in his case the chemo and then a stem cell transplant seem to stir up the issue as he had never really had problems til that point. My brother has the gene but has never had any issues.
He used to feel so much better after doing the blood cleaning, as we called it, so hopefully that will help your son. I am glad that he got diagnosed so quickly and that it is a treatable condidion- poor little mite though.
I had orthodics as a child due to large arch and ankle issues- asics and new balance shoes were good for it but not sure how they are like for kids? Worth checking out though!!
I don't know of any children with it, but my father-in-law does and also got quite unwell with it a few years ago, when it was still undiagnosed. He gives blood regularly now and it seems under control. Thankfully, my husband seems to have escaped it, but it's something we remain aware of.
Hope your little boy feels better soon.
My little man has an identical photo of his delightful flat feet. In addition he has G+ width feet. The podiatrist has recommeded buying all his shoes from a place like Athletes foot from now on and to only get shoes with laces. We have found Newbalance in the Extra Wide fitting best.
How are the leg aches since you have had the orthotics? We have them here too and I just put it down to growing pains, but I am wondering about the Haemochromatosis as we do have a blood disorder in the family but I don't know the details...
So sorry to hear about your little boy having this. As someone else said at least you now know what the problem is and you can treat it.
My daughter (3 years) has a condition that requires regular blood tests and ultrasounds and I must say that bribing with lollies or small inexpensive toys works a treat when it's time for tests. ;-)
Hi,
Thanks for popping over to my blog!
Sorry to hear about your son, but pleased that they found out what it is so you can do what you need to do.
Haemochromatosis is in our family, and I am a carrier. I have never heard of a child being diagnosed so young.
Take care and I look forward to following you and your family.
I've never heard of this before, so I learned something new today. I hope that his has been caught nice and early so that no real damage has been done to anything important, IYKWIM.
Poor little man. I'm glad you at least have an idea of what's happening and can get started on treating him and letting him get on with life.
thanks for linking up your post at key lime today! :)
I did a little research a while back to see if it might be part of my problems (my dad is a carrier of the gene but hasn't actually got haemochromatosis but all his siblings have it). From my reading it looked like it was unlikely to show up until your 20's and I have never heard of a child with it. My sister and I got tested but neither of us have the gene, my brother did the old "yeah, next time I'm at the doctor I'll ask"... he's never done it.
I must say, the thought of giving blood quite so regularly scared the life out of me, I feel for your little man.
Thank you all so much for your lovely comments!
Our Doctor has never found it in a child so young, which is the main reason i wrote this post in hoping i might find someone else whos child may have it. (as i said in my post we only found it by accident.)
I am very interested in hearing about other peoples 'dramas' with Haemochromatosis, at least then i will have half an idea on what to expect.
It seems we are all getting sicker these days alot more so than our parents and grandparents with things that we never heard of! I have Fibromyalgia and a chronic pain condition in my bladder and have to take pain meds daily. Where all this came from is a mystery to me. I am a new follower of your blog thru GFC, Facebook and Twitter. I have to do them all at once because I never know when I will be able to do the blog hops again. This is actually my first one in about a month. I attempted one earlier a few weeks back but did not have the energy to finish. I would love a follow back on all three if you don't mind. Thanks so very much and have a great day!
Mary@http://www.mmbearcupoftea.com
Post a Comment